Helping to find a silver lining (extract)

From Volume 4 Number 5


TERESINA SIEUNARINE, executive director of the Autistic Society of Trinidad and Tobago, describes the situation facing families with autism there, in this article written especially for LOOKING UP

PORT-OF-SPAIN, Trinidad and Tobago: In early 1988, my husband and I arranged for our son, Kester, to attend a Child Development Centre in Florida, USA to find out why he was such a difficult child with language delay. After a series of consultations with a variety of medical personnel, we were given the diagnosis of autism. I look back on this experience as one of the worst times in my life.
    The way we were given this diagnosis did not help the situation and, when we asked about reading material, we were told to buy what turned out to be just a medical text book.
    On our return to Trinidad, I felt helpless and hopeless. I learned that many persons, including medical and educational personnel, did not know about autism or feared telling me about it ...

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